Strategies for Building National-Scale Longitudinal Patient Monitoring Systems for HIV Treatment and Care in PEPFAR Countries
October 2-5, 2007
Lusaka, Zambia
For more information please email Zambia-EPMS@macrointernational.com

Agenda


Time Topic Location Presenter(s)
DAY 1: TUESDAY, OCT. 2 AMALILA
0815 – 0845 Registration
0845 – 0855 Introductions and welcome Dr. Marc Bulterys
Country Director, CDC-Zambia
0855 – 0915

Opening remarks

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Mr. Osward Mulenga
M&E Director
National AIDS Council
0915 – 0930

Meeting goals, agenda, and expected outcomes; Purpose of the work groups; purpose of the site visits

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Xen Santas
CDC/Global AIDS Division
0930 – 0950

Global context for strengthening health information systems

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Dr. Michael St. Louis
CDC/Coordinating Office for Global Health
0950 – 1010

Longitudinal HIV data for decision making at local through global levels

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John Aberle-Grasse
CDC/Global AIDS Division
1010 – 1030 BREAK
1030 – 1110

Case Study Country – Zambia

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Derrick Muneene
Mark Shields

CDC-Zambia
1110 – 1150 Unique IDs—1
  • Overview and terminology
  • Clinical needs for unique IDs (a use-case approach)
    • Retrieving data from patients seen at different facilities
    • Analytical/statistical issues

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Dr. Shaun Grannis
CDC-Zambia
1150 – 1220 Unique IDs—2
  • Methodologies for generating/assigning unique IDs
  • National policy implication—Health ID vs. National ID

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Suzanne Cloutier
BOTUSA
1220 – 1400 LUNCH
1400 – 1440

Case Study Country—Cote d’Ivoire

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Dr. Salam Gueye
CDC-Côte d’Ivoire
1440 – 1530

Case Study Country—South Africa

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Dr. Chris Seebregts
Medical Research Council,South Africa
1530 – 1610

Case Study Country—Botswana

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Suzanne Cloutier
BOTUSA
1610 – 1630 BREAK
1630 – 1710

Case Study Country—Malawi

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Amy Gottlieb
CDC-Malawi
1710 – 1730

Review of workshop bibliography: summary and synopsis of key background documents

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Chris Bishop
Macro International Inc.
1730 – 1800 BREAK
1800 – 1830 Facilitators, country leads, workshop organizers only: Preparation for work group discussions
1830 – 2000 Reception The Lawns
2000 CLOSE DAY 1

Time Topic Location Presenter(s)
DAY 2: Wednesday, OCT. 3 AMALILA
0900 – 1000 Security and confidentiality
  • Record linkage, de-identification, privacy issues, etc.
  • Concrete steps to make security/confidentiality work in individual countries

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Xen Santas
CDC/Global AIDS Division

Dr. Mark Shields
CDC-Zambia
1000 – 1030

Architectural Considerations for National Health Information Infrastructures in Resource Poor Settings

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Bill Lober
I-TECH
1030 – 1100

Selecting and implementing information systems to support HIV care

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Dr. Mark Spohr
World Health Organization
1100 – 1120 BREAK
1120 – 1145 Data preparation and analysis: issues at the facility, district, national, and international level
  • Tools and strategies for preparing public use data
  • Basic techniques for analysis of anonymized and pseudo-anonymized data
  • Record de-duplication
  • Ethical and legal issues in data use

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Chris Bishop
Macro International Inc.
1145 – 1215

Case Study Country—Rwanda

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Eddie Kariisa
1215 – 1230

Instructions to the work groups

Xen Santas
Dr. Steven Yoon
1230 – 1345 LUNCH The Lawns
Afternoon: Five Concurrent Work Groups (Session I) Room
Facilitator
Country lead
1345 – 1515

Following a prepared outline, each group will work with a facilitator and country lead to draft an implementation plan for a national-scale longitudinal patient record system for the country assigned to that group.

Case study 1: Zambia Amalila
Lela Baughman
Derick Muneenee
Case study 2: South Africa/Botswana Mupani 1
Chris Bishop
Heidi O’Bra
Case study 3: Rwanda Baobab
Mark Spohr
Suzanne Cloutier
Case study 4: Cote d’Ivoire Insaka
Steven Yoon
Salam Gueye
Case study 5: Malawi Board Room (first floor)
John Aberle-Grasse
Amy Gottlieb
1515 – 1535 BREAK
1535 – 1715 Continue work group session I Room
Facilitator
Country lead
1715 – 1815 Facilitators, country leads, workshop organizers only: Review of work group session I Amalila
1800 – 2000 Market Place
  • Malawi – Baobab System
  • OpenMRS
  • SmartCare
  • ACONDA (CI)
  • South Arica – Electronic TB Registry (ETR)
  • University of Washington/I-TECH (Haiti)
  • Malawi–Taiwan Medical Mission
  • CareWare
  • TRACnet
Amalila
2000 CLOSE DAY 2

Time Topic Location Presenter(s)
DAY 3: THURSDAY, OCT. 4 AMALILA
0900 – 1000

Plenary – SmartCare Demonstration/Discussion AMALILA

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MOH CDC EGPAF team
Morning: Five Concurrent Work Groups (Session II)
1000 – 1300 Review of key steps, action items, and plans from day 2 sessions. Continuation of work group deliberations. Room
Facilitator
Country lead

Same as Day 2
1300 – 1430 LUNCH The Lawns
Afternoon: Site Visits
1430 – 1700 Each work group will travel to a separate facility to review first hand the work of Zambia’s patient care system
1700 – 1800 Facilitators, country leads, workshop organizers only: Review of work group session II Amalila
1800 CLOSE DAY 3

Time Topic Location Presenter(s)
DAY 4: FRIDAY, OCT. 5 AMALILA
Morning: Reports from the work groups and next steps Facilitator Country lead
0900 – 0930

Group I: Zambia

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Lela Baughman
Derick Muneenee
0930 – 1000

Group 2: South Africa/Botswana

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Chris Bishop
Suzanne Cloutier
1000 – 1030

Group 3: Rwanda

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Mark Spohr
Eddie Kariisa
1030 – 1050 Discussion
1050 – 1110 BREAK
1110 – 1140

Group 4: Cote d’Ivoire

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Steven Yoon
Salam Gueye
1140 – 1210

Group 5: Malawi

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John Aberle-Grasse
Amy Gottlieb
1210 – 1230 Discussion
1230 – 1245

Wrap Up and Next Steps

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Xen Santas, Dr. Steven Yoon
1245 – 1300

Closing Remarks

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Dr. Marc Bulterys
Country Director, CDC-Zambia
1300 CLOSE DAY 4
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