Strategies for Building National-Scale Longitudinal Patient Monitoring Systems for HIV Treatment and Care in PEPFAR Countries
October 2-5, 2007
Lusaka, Zambia
For more information please email Zambia-EPMS@macrointernational.com

Annotated Bibliography


Year Title Author
1. Health Information Systems in the Developing World—Guidance Documents/Review Articles
A. 2007

Registries for Evaluating Patient Outcomes—A User’s Guide

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Agency for Healthcare Research and Quality (AHRQ)
B. 2006

Electronic Health Records – Manual for Developing Countries

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World Health Organization, The
C. 2004

Patient Monitoring Guidelines for HIV Care and Antiretroviral Therapy (ART)

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World Health Organization, The
D. 2007

Implementing Electronic Medical Record Systems in Developing Countries

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Fraser, HSF, Biondich, P, Moodley, D, Choi, S, Mamlin
E. 2005

Developing Health Management Information Systems — A Practical Guide for Developing Countries

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World Health Organization, The
2. Health Information Systems in the Developing World—Country Examples/Implementation
A. 2007

Co-constructing Local Meanings for Child Health Indicators in Community-Based Information Systems—The UThukela District Child Survival Project in KwaZulu-Natal

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Byrne, E and Gregory, J
B. 2006

Innovative Approaches to Application of Information Technology in Disease Surveillance and Prevention in Western Kenya

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Odero, W, Rotich, J, Yiannoutsos, CT, Ouna, T and Tierney WM
C. 2006

Standardization of Health Information Systems in South Africa—The Challenge of Local Sustainability

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Jacucci, E, Shaw, V and Braa, J
D. 2006

Scaling of Health Information Systems in India—Challenges and Approaches

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Sahay, S and Walsham, G
E. 2006

The Role of Telemedicine and Information Technology in the Redevelopment of Medical Systems—The case of Kosova

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Latifi, R, Muja, S, Bekteshi, F, Merrell, RC
F. 2006

E-health Progresses in Romania

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Moisil, I and Jitaru, E
G. 2005

Analyzing the Problem of Unsustainable Health Information Systems in Less-Developed Economies—Case Studies from Tanzania and Mozambique

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Kimaro, HC and Nhampossa, JL
H. 2005

Design and Implementation of a Health Management System in Malawi—Issues, Innovations and Results

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Chaulagai, CN, Moyo, CM, Koot, J, Moyo, HB, Sambakunsi, TC, Khunga, FM, Naphini, PD
I. 2005

An Electronic Medical Record System for Ambulatory Care of HIV-infected Patients in Kenya

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Siika AM, Rotich JK, Simiyu CJ, Kigotho EM, Smith FE, Sidle JE, Wools-Kaloustian K, Kimaiyo SN, Nyandiko WM, Hannan TJ, Tierney WM
J. 2005

Designing and Implementing an Electronic Health Record System in Primary Care Practice in Sub-Saharan Africa—A Case Study in Cameroon

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Kamadjeu, R., Tapang, EM and Moluh, RN
K. 2005

AMPATH Medical Record System (AMRS)—Collaborating Toward an EMR for Developing Countries

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Mamlin, BW and Biondich, PG
L. 2005

Negotiating Multiple Rationalities in the Process of Integrating the Information Systems of Disease Specific Health Programmes

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Chilundo, B and Aanestad, M
M. 2005

Key Factors for Small and Medium Enterprises in Taiwan to Successfully Implement Information Systems

Wong, TT and Lu, YT
N. 2004

Nigerian Case Study—Lessons Learned in Piloting the National Management Information System in Bauchi, Enugu and Oyo

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Akpan, T., Searing, H. and Adetunji, A.
O. 2004

An Information System and Medical Record to Support HIV Treatment in Rural Haiti

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Fraser, HS, Jazayeri, D, Nevil, P, Karacaoglu Y, Farmer PE, Lyon E, Fawzi MK, Leandre F, Choi SS and Mukherjee JS
P. 2003

Installing and Implementing a Computer-based Patient Record System in Sub-Saharan Africa: The Mosoriot Medical Record System

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Rotch, J.K., et al.
3. Health Information Systems in the Developing World—Zambia SmartCare Implementation
A. 2007

SmartCare Technical Overview

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Zambia MOH
B. 2004

Letter to Zambia MOH

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CDC
Zambia SmartCare Implementation—National Manuals
C. 2007

SmartCare Procedures Manual

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Zambia MOH
D. 2007

SmartCare Users Manual

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Zambia MOH
Zambia SmartCare Implementation—Training Documents
E. 2007

SmartCare Training Methodologies Manual

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Zambia MOH
F. 2007

SmartCare System Training Manual (PowerPoint presentation)

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Zambia MOH
G. 2007

SmartCare System Training Manual—Deployment Framework (PowerPoint presentation)

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Zambia MOH
H. 2007

National-Level Training Curriculum

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Zambia MOH
I. 2007

National-Level Training Pre-Test Form

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Zambia MOH
J. 2007

National-Level Training Post-Test Form

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Zambia MOH
K. 2007

Provincial-Level Training Curriculum

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Zambia MOH
L. 2007

Provincial Training Case Study

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Zambia MOH
M. 2007

Provincial Training Pre-Test Form

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Zambia MOH
N. 2007

Provincial Training Post-Test Form

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Zambia MOH
O. 2007

Initial SmartCare Administration Site Setup Form

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Zambia MOH
P. 2007

SmartCare Site Preparation Checklist

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Zambia MOH
Q. 2007

Sample Operations Analysis Flowcharts

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Zambia MOH
R. 2007

Zambia Sample Maps

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Zambia MOH
4. Health Information Systems in the Developing World—National Electronic Data System for ART M&E in Malawi
A. 2007

Specifications for Electronic Data System for National ART Management and Evaluation in Malawi

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Malawi MOH
B. 2007

Antiretroviral Therapy Messaging: Transfer and Report of Patient Health Record Implementation Standard Document Using HL7/XML Message with HL7 Version 2.5

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Malawi MOH
5. Health Information Systems in the Developing World—Assessments and Evaluations
A. 2006

Evaluation of a Hospital Information System in an International Context—Towards Implementing PB-ISM in Turkey

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Ozkan, S., Baykal, N., & Sincan, M.
B. 2005

Evaluation of Existing District Health Management Information Systems—A Case Study of the District Health Systems in Kenya

Odhiambo-Otieno, G. W.
C. 2005

Evaluation Criteria for the District Health Management Information Systems—Lessons from the Ministry of Health, Kenya

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Odhiambo-Otieno, G. W., & Odero, W. W.
6. Health Information Systems in the Developing World—Assessments and Evaluations—Botswana—BHRIMS District Informatics Assessment
A. 2006

BHRIMS District Informatics Assessment Report

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National AIDS Coordinating Agency (NACA)/EOH Consulting
B. 2006

Information Technology Assessment Form

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NACA/EOH Consulting
C. 2006

Instructions for Completing Information Technology Assessment Form

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NACA/EOH Consulting
D. 2006

Information Technology Use Assessment Form

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NACA/EOH Consulting
E. 2006

Instructions for Completing Information Technology Use Form

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NACA/EOH Consulting
F. 2007

Botswana HIV Data Warehouse: Report and Recommendations on Resources, Process, and Data Model

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Boucher, P.
7. Governance
A. 2005

Designing and Implementing Household Targeting Systems—Lessons from Latin American and the United States

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Castaneda, T., Lindert, K. with de la Briere, B., Fernandez, L., Hubert, C., Larranaga, O., Orozco, M., & Viquez, R.
8. Business Plan Development
A. 2007

HIE Business Plan Template

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eHealth Initiative
9. Innovative Technologies—Patient-Centric
A. 2006

Design and Implementation of a Smart Card Based Healthcare Information System

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Kardas, G., & Tunali, E. T.
B. 2006

A Computer-Based Medical Record System and Personal Digital Assistants to Assess and Follow Patients With Respiratory Tract Infections Visiting a Rural Kenyan Health Centre

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Diero, L., Rotich, J. K., Bii, J., Mamlin, B. W., R. M., Einterz, Kalamai, I. Z., W., & Tierney, W. M.
10. Innovative Technologies—Provider-Centric
A. 2005

Standardized Exchange of Medical Data Between a Research Database, an Electronic Patient Record, and an Electronic Health Record Using CDA/SCIPHOX

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Gerdsen, F., Müeller, S., Jablonski, S., & Prokosch H. U.
B. 2005

Cross-Institutional Data Exchange Using the Clinical Document Architecture (CDA)

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Müller, M. L., Uckert, F., Bürkle, T., & Prokosch, H. U.
C. 2001

Internet Patient Records: New Techniques

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Brelstaff, G., Moehrs, S., Anedda, P., Tuveri, M., Zanetti, G.
D. 2001

An Open, Component-Based Information Infrastructure to Support Integrated Regional Healthcare Networks

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Katehakis, D. G., Kostomanolakis, S., Tsiknakis, M., Orphanoudakis, S. C.
11. Information and Communication Technologies (ICT)
A. 2006

Cooking Up an Open Source EMR for Developing Countries: OpenMRS—A Recipe for Successful Collaboration

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Mamlin, B. W., & Biondich, P. G.
B. 2006

The OpenMRS System—Collaborating Toward an Open Source EMR for Developing Countries

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Wolfe, B. A., Mamlin, B. W., Biondich, P. G., Fraser, H. S., Jazayeri, D., Allen, C., Miranda, J., & Tierney, W. M.
C. 2005

Electronic Health Record—Public health (EHR-PH) System Prototype for Interoperability in 21st Century Healthcare Systems

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Orlova, A. O., Dunnagan, M., Finitzo, T., Higgins, M., Watkins, T., Tien, A., Beales, S.
12. Non-Health Sector Information System Examples—Voting
A. 2005

E-government in South Korea—Planning and Implementation

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Im, J. H., & Seo, J. W.
13. Non-Health Sector Information System Examples—Academic
A. 2005

Evaluation of Automated Services in Nigerian Universities

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Sani, A., & Tiamiyu, M.
14. Non-Health Sector Information System Examples—Environmental
A. 2004

Africa Environment Information Network—Implementation Guidelines (Revised Draft)

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Environment Programme, United Nations
15. Software Development Lifecycle Methodology—Information Technology Architecture
A. 2007

A Modified Capability Framework for Improving Software Production Processes in Jamaican Organisations

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Chevers, D. A., & Duggan, E. W.
B. 2004

A Simple and Low-Cost Internet-Based Teleconsultation System That Could Effectively Solve the Health Care Access Problems in Underserved Areas of Developing Countries

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Kuntalp, M., & Akar, O.
16. Standards—Concepts
A. 2004

Applying Information Lifecycle Management Strategies Enables Healthcare Providers to Accelerate Clinical Workflow

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Katz, R.
B. 2002

Controlling Software Project Risks: An Empirical Study of Methods Used by Experienced Project Managers

Addison, T., & Vallabh, S.
C. 2002

An Interpretive Study of Software Risk Management Perspectives

Padayachee, K.
D. 1992

Software Development Risk: Opportunity, Not Problem

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Van Scoy, R. L.
17. Standards—Standardized Medical Vocabulary
A. 2007

Term Identification Methods for Consumer Health Vocabulary Development

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Zeng, Q. T., Tse, T., Divita, G., Keselman, A., Crowell, J., Browne, A. C., Goryachev, S., & Ngo, L.
B. 2007

Assessing Consumer Health Vocabulary Familiarity: An Exploratory Study

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Keselman, A., Tse, T., Crowell, J., Browne, A., Ngo, L., & Zeng, Q.
C. 2006

A Framework for Characterizing Terminological Systems

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Cornet, R., de Keizer, N. F., & Abu-Hanna, A.
D. 2006

eHealth Literacy: Essential Skills for Consumer Health in a Networked World

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Norman, C. D., & Skinner, H. A.
18. Standards—Messaging
A. 2007

Anti Retroviral Therapy Messaging: Guidance for Interface Implementation (Draft)

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WHO ART
B. 2007

Investigating Risk Exposure in E-Health Systems

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Croll, P. R., & Croll, J.
C. 2003

Collaboration—A New IT-Service in the Next Generation of Regional Health Care Networks

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Bruun-Rasmussen, M., Bernstein, K., & Chronaki, C.
19. Standards—Concepts
A. 2007

Developing Health Information Systems In Developing Countries—The Flexible Standards Strategy

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Braa, J., Hanseth, O., Heywood, A., Mohammed, W., & Shaw, V.
B. 2002

Unified EHR Standards—Is Convergence Possible?

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Beale, T.
20. Standards—Indicators
A. 2005

Clinical Data Standards in Health Care in Five Case Studies

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Kim, K.
B. 2003

A Guide to Monitoring and Evaluation of Capacity-Building Interventions in the Health Sector in Developing Countries

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LaFond, A., & Brown, L.
C. 2000

National AIDS Programmes: A Guide to Monitoring and Evaluation

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Joint United Nations Programme on HIV/AIDS (UNAIDS)/MEASURE
21. Data Analysis and Visualization—GIS
A. 2006

Improving Imperfect Data From Health Management Information Systems in Africa Using Space-Time Geostatistics

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Gething, P. W., Noor, A. M., Gikandi, P. W., Ogara, E. A., Hay, S. I., Nixon, M. S., Snow, R. W., & Atkinson, P. M.
22. Data Analysis and Visualization—Picture Archiving and Communication Systems
A. 2006

Understanding PACS Development In Context—The Case of China

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Xue, Y., & Liang, H.
23. Security and Confidentiality
A. 2006

Interim Guidelines on Protecting the Confidentiality and Security of HIV Information: Proceedings From a Workshop

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UNAIDS
B. 2006

Technical Guidance for HIV/AIDS Surveillance Programs Volume III: Security and Confidentiality Guidelines

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Centers for Disease Control and Prevention (CDC)
24. Unique Patient Identifiers
A. 2007

Probabilistic Versus Deterministic Data Matching: Making an Accurate Decision

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Schumacher, S.
B. 1997

Analysis of Unique Patient Identifier Options

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Appavu, S. I./HHS
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